A long time ago I used to be able to take a pregnancy test, see that it was positive and be excited, waiting with great expectation the many wonderful- and sometimes difficult- symptoms of pregnancy to hit within a week or two. After our 5th was born something new began and it has continued for the last 5 years. On doctors charts it’s called “recurrent pregnancy loss”. What it looks like is this: I take a pregnancy test, it’s positive. Sometimes I take several and they get darker and darker- for day and even weeks. But within 2-3 weeks they start to get lighter, if I’m checking HcG levels they start to increase and then they stop and around 6 weeks the pregnancy is over and I begin to miscarry. 6 of my 8 pregnancy losses have played out this way.
In 2019 we thought we discovered the cause - low progesterone. I successfully conceived and brought Anastasia and Scotty to term by taking progesterone immediately after ovulation and doubling it when I got a positive pregnancy test. However, in the last 6 months I’ve had 3 more losses in a row during which I took my progesterone as directed, the same way I did with Annie and Scotty, and still lost my little ones. I’m writing about it because as I navigate it all there are so few people that I can talk to- who have experienced it and who understand it- and if this can serve to help anyone woman who’s dealing with it feel less alone and isolated that would be great. Also I’m processing what has turned out to be the most excruciating experience of my life - a cross that I never would have thought I’d be given and one that I’m struggling to carry well. I struggle with resentment towards friends who just find out they’re pregnant and stay pregnant, even resentment toward my past self who enjoyed that experience 5 times in a row and took it for granted. I even COMPLAINED about the onset of the hard pregnancy symptoms that I would give anything to experience now because that would mean things were actually progressing and not ending again
This most recent one has gone on much longer, with my HcG levels continuing to go up a little for almost a month, but still staying so low that we've known for at least 2 weeks that the pregnancy is not viable. The pain of technically "being pregnant" without being pregnant for weeks is unlike anything I've experienced. There have been ultrasounds and about a million blood draws to try to rule out ectopic and verify there is no heartbeat and I just narrowly avoided my first D&C, I finally began miscarrying naturally the day before I was supposed to go in for it. We are traveling to the Holy Land in one week and the time crunch nearly forced the D&C route. I know D&C is no biggy for so many but the risk of scar tissue (among others) which would further compromise my already difficult fertility situation made it a very not ideal option.
As I sat waiting for my most recent ultrasound there was a couple who had just come out from theirs with their little ultrasound photos of their baby that looked about exactly how big my own little one would be, if he/she had continued to grow.
It took my breath away.
I stared at the ceiling trying to hold back tears.
I have 7 kids! I’ve gotten to experience the joy of that first ultrasound so many times! How can I still be as sad as if it this were my first baby!? I can because I love each of these little ones as much as I loved my very first baby and every single moment with each child has brought me the same amount of joy as all the first moments with my first baby.
It is a difficult situation to navigate with so many people in the medical field, that is, being a mother with 7 beautiful children and coping with miscarriage. I have so many babies! Seven? Isn’t that enough? Why would we want more? Why are you trying for more? Why can’t you be content? These are questions I hear (sometimes out loud, sometimes implied) and I defensively attempt explanations to the various medical professionals asking too many questions while I grieve. As I experience the grief that is so raw and real with each loss, I’m so careful not to express even a hint of ingratitude for the kids I’ve been given. On the contrary, each time I’ve miscarried my gratitude for my living children increases exponentially. I cannot believe the Lord blessed me with these babies, even in my young and comparatively ungrateful state, when I thought of babies as my right and took my fertility for granted.
I used to be worried about this blog turning into a blog about miscarriage but at this point I think that the only way it will continue to exist is as a place for me to write about just that, and I’m completely ok with it, though I think I’ll need to change the name of it. It’s strange and sad to think that I began it as a way to cope with the chaos of having so many babies close together and to find community with other mothers “drowning in babies”. Now here I am 13 years later writing to process the grief I have from the many babies I’ve lost and to find community in a whole new area of motherhood- with those who’ve grieved their lost children as well.
I never would have chosen this as the my path to holiness but it’s ok. The cross is the cross and if it gets me to Our Lord I will continue to accept it, in the imperfect way that I do.
We found out we were expecting on Easter Sunday and carried our little one through the feast of Saint Athanasius. We’ve name this little one Athanasius Paschal. Saint Athanasius and Saint Paschal, pray for us.
Anna, I will pray for you. The cross is heavy for many of us.
ReplyDeleteOh Anna. We don't know each other, but I could relate to every word of this post. Every word. We had two healthy pregnancies, two miscarriages, another healthy pregnancy, another miscarriage, and then I started taking progesterone as you described and had two more healthy pregnancies. I thought I had found the solution to our losses. My fourth miscarriage was agonizing. I knew something was amiss when pregnancy symptoms didn't start and that was confirmed by low HCG. But then, miracle of miracles, we saw a heartbeat. The following week, the heartbeat was gone but we had to keep waiting to confirm that the baby wasn't growing. My body didn't miscarry naturally (probably because I doggedly kept taking progesterone) and I ended up in an emergency D&C due to heavy bleeding. The whole ordeal lasted almost a month. I typed all of this just so you know that you aren't alone. I am praying for you and please pray for me.
ReplyDeleteElizabeth thank you so much for this comment. I am so so sorry for your losses- it is such an intensely heavy cross. Please know that I am praying for you!
DeleteI'm so sorry for your losses
ReplyDeleteI'm so sorry, Ana. Every baby is unique and unrepeatable. It doesn't matter how many kids you had prior or how many you will have after-- when you lose one, you lose that specific child and it's heartbreaking.
ReplyDeleteHave you looked into MTHFR? It's so hard to find a doctor who will treat it but I found a Naprotechnology doctor who treats me for both low progesterone and MTHFR. We too thought I only had low progesterone but lab results revealed i had the genetic mutation MTHFR which can cause miscarriage (even if you've had successful pregnancies, the gene can be "triggered" after them and results in recurrent loss after several healthy pregnancies.). It is VERY treatable and we have gone on to have four living children with me being on progesterone, baby aspirin, and Lovenox (blood thinner) injections. Please feel free to email me if you want more info about my Napro who sees patients long distance! Hugs to you.
Hi Laura, thank you so much for this comment. Yes I have been diagnosed with both MTRF gene mutations, they began treating me at the beginning of this pregnancy but my guess is that it was too late by that point and that I should be been treating it even before becoming pregnant. I also think I have some major hormonal imbalances based on some crazy cycle stuff. Either way it was so good to read your comment and know that I am not alone. Praying for you!
DeleteI so wish there was something I could do to help Ana. I will be praying for your sweet souls and for your mother's heart that is breaking. Please keep writing :)
ReplyDeleteI am so sorry for your sorrow and will say a prayer for you, as I know that it is so hard and deep. I have had one miscarriage and know that it is such a painful time. I can relate so much of this. I have 6 children, including one miracle "baby" (preschooler), and a diagnosis which makes it virtually impossible to have more. I am grateful, but aching. I used to read about, and hear homilies of, the cross and have a vague sense of what my sufferings were, but looking back I don't even recall, sleeplessness? busyness? nausea? I also know those things were really hard, but now I wish for them back.
ReplyDeleteI have 9 living children and have lost 9 pregnancies. There are so many complications possible that I'm not sure how pregnancy ever turns out right, it's such a miracle! I'm so sorry for your loss(es). Pope Paul VI institute helped me with several pregnancies, long distance. Our genetic testing was all clear (done locally, easy blood draw but expensive). I had CMV at one point, and miscarried 3x in a row (it's a type of mono that causes severe birth defects). I did have low progesterone, but the big possible cause for me was likely low thyroid function. My tsh was always "fine" but my t3 and T4 were very low. Mthfr, one defect, causes vitamin deficiencies. And also, endometriosis might be a factor for me, had surgery 20 years ago, but I read endo tissue can release something that hurts pregnancy? So many things to look into? But hopefully it gives you hope... there is always hope! Hoping you can find a napro doctor to work with.
ReplyDeleteI am so sorry for your loss. Thank you for sharing your experience and feelings.
ReplyDeletePraying for you.I could have written a lot of what you said in your post. I have 8 living children and have had more miscarriages than I can count, at least 15-20, the most recent being when I was 49 and carried until 12 weeks. During one of these periods of waiting to m/c, the Holy Spirit moved me to realize some things and my mentality on it all shifted. Those thoughts were - Praise Him in all things, ("The Lord gives and the Lord takes away, blessed be the name of the Lord"), that I can truly do all things through Christ who strengthens me, and that I was being called into a deeper trust in the Lord through these repeated situations. Not just day to day trust, but moment to moment during those excruciating waits and wondering if I was noticing symptoms or not. The babies belong to God and we are called to treasure them while they are in our womb and as long as we have them with us. That's it. God wanted me to learn contentment with my circumstances, and it took quite a few m/cs to get there, and lots of practice after I finally learned the lesson as well! I never looked into medical treatments or root causes or anything, partly because we were drowning in kids at home and they would have laughed, but also for the above reason of actually feeling content with the family we did have, as well as being open to more. God is faithful, trust Him!
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